Well, I have determind that most of the Doctors in my area know less about Lyme than I do...
I have several calls and emails in with different people with no more answers than before...Hopefully I can find a LLMD to get some real answers in the next week...Would be nice to check one more thing off my list or get on a road to recovery...:msp_sad:
I'm sorry you are having trouble finding a doc that can help you out, but I have found that in some cases the best doctor you can find is yourself. I am not advocating you go in the business and hang out a shingle,but when it comes to your own care it pays to do as much research as you can on your own, and when you go see a doc go armed with some knowledge.
After all, doctors learn from two different ways.For one, they learn it in a book or lecture in medical school, and they forget tons by the time they get in practice. The other way of coarse is from experience.It never hurts to read up on the subject yourself, and if you fit the profile then demand treatment for lyme disease.After all, that is all the doctor is going by.Blood tests for Lyme disease are highly susceptible to false readings, and you basically have a 40 percent chance of having lyme disease and testing negative.
All in all, it doesnt hurt much at all to start the antibiotics and see how you feel. While its never a good idea to be on antibiotics if you dont need them, its far worse not to take them and need them in this case. Here is the questionnaire that my doc gave me to fill out.
Have you had any of the following?
1. Tick Bite (deer tick or dog tick?) Y N
2. Rash at bite site Y N
3. Rashes at other sites Y N
4. Joint/muscle pain in feet Y N
5. Swelling in toes, balls of feet Y N
6. Ankle pain Y N
7. Burning in feet Y N
8. Shin splints Y N
9. Unexplained fevers, sweats, chills Y N
10. Unexplained weight change (loss or gain) Y N
11. Fatigue, tiredness Y N
12. Unexplained hair loss Y N
13. Swollen glands Y N
14. Sore throat Y N
15. Testicular pain / pelvic pain Y N
16. Unexplained menstrual irregularity Y N
17. Unexplained milk production (lactation) Y N
18. Irritable bladder or bladder dysfunction Y N
19. Sexual dysfunction or loss of libido Y N
20. Upset stomach Y N
21. Change in bowel function (constipation, diarrhea) Y N
22. Chest pain or rib soreness Y N
23. Shortness of breath, cough Y N
24. Heart palpitations, pulse skips, heart block Y N
25. Joint pain or swelling Y N
26. Stiffness of the joints, neck or back Y N
27. Muscle pain or cramps Y N
28. Twitching of the face or other muscles Y N
29. Headache Y N
30. Neck creaks and cracks, neck stiffness Y N
31. Tingling, numbness, burning or stabbing sensations Y N
32. Facial paralysis (Bell's Palsy) Y N
33. Eyes/vision: double, blurry, pain, increased floaters Y N
34. Ears/hearing: buzzing, ringing, ear pain Y N
35. Dizziness, poor balance, increased motion sickness Y N
36. Lightheadedness, wooziness, difficulty walking Y N
37. Tremor Y N
38. Confusion, difficulty in thinking Y N
39. Difficulty with concentration or reading Y N
40. Forgetfulness, poor short term memory Y N
41. Disorientation: getting lost, going to wrong places Y N
42. Difficulty with speech Y N
43. Mood swings, irritability, depression Y N
44. Disturbed sleep: too much, too little, early awakening Y N
45. Exaggerated symptoms or worse hangover from alcohol Y N
46. Any history of heart murmur or valve prolapse? Y N
The things that really caught my attention at first was the rapid heart rate and the weight gain.I have gained 30 pounds in four months.I cut my food intake drastically, and nothing helped. Then the hard time concentrating, forgetfullness. I would walk out to my shop and by the time I got out there I forgot what I went out there for. Then my wife commented one night on how irritable I was becoming.
The thing that really shook me up?I actually got up one morning, ate breakfast, and climbed into the truck and drove into town.And forgot to change out of my night clothes of shorts and a t shirt. I knew I had a problem then.
outdoorlivin, get you some help before its too late. Be firm with the docs no matter what the blood tests say if you look over that list and say, "holy crap, thats me!" I am like most of you guys in the "I aint going to no doctor,I will be fine" area, but this one literally scared the crap out of me. In those last days before I got help, I would pick a fight with anyone over just about anything.Every muscle and joint hurt, I would forget where I was going half the time, and concentrating on anything was an impossible task. I changed the oil on my truck one day and for some god forsaken reason stuck the oil plug in my pocket.Looked all over for the dang thing, gave up, and went into town for a new one.Bought a plug for the wrong vehicle, got home, discovered my error, and went back to town to exchange it. Once I got there I couldnt remember which store I had gotten it from. Found the receipt, exchanged it, and went home. Later that night i wondered what that strange bolt was in my pocket when I cleaned out pants. It took me three days of staring at that friggin bolt on the dresser to realize what it was.
Look over that list.If you fit the profile for any ten of the symptoms, print it out and take it along to your doc. Dont take no for an answer, and dont let yourself get as bad as I did before you get some help.
outdoorlivin if you need any help, or anyone else for that matter, or just want to talk about it, shoot me a PM and I will send you my phone number.Life is to short to go down from a bug like this and everyone of you have a life that is too precious to give up.
I have been on my meds for a little over ten days now, and I can feel the difference already. Mind is clearing up, my attitude is changing for the better, and the energy is flowing back.Muscle aches are gone, heart quite racing, and I can actually type without a million errors or backspaces.I actually spent some time last night doing a little writing for the first time in three months, and it was very therapeutic.
Thanks again for all the attention you all have drawn to this issue, and for all the kind words. I dont know what I would do without all you great guys and gals.
Ed